Thursday, May 13, 2010

Fibromyalgia Awareness Day

Today is Fibromyalgia Awareness Day. I can remember talking with CK years ago (2000?) and her telling me that she thought I had Fibro. I remember dismissing the idea almost outright. "no, no, it's just stress. I'm fine." or the quintessential, "It's all in my head." The irony is, of course, she was right and diagnosed me 4+ years earlier than the rheumatologist.

I'm fairly stable now, with a small army of pills I take every day. I hate pills with a passion but I can tell when I miss a dose. I've read on some 'holistic' medicine web pages about how Lyrica is just another ploy by Big Pharma to dip into our pockets. I want to tell them to fuck off. Lyrica is the corner stone of my ability to live a normal life. Yes, I'm forced to take Nexium (oh, another Big Pharma greed grabber. pfft) because of the high doses of ibuprofen I take, but they work for me. I know what it's like to live with pain so bad you don't want to get out of bed, but you can't stay in bed because that hurts too and sleep is almost nonexistent. I know what it did to my life, my career and my marriage.

I don't *ever* want to go back to that. So, I keep taking dumb little pills and going to doctors for check ups every 3-6 months. I may not be 'happy' doing it, but I'm glad they're there and can help. Besides, Dr Pro is cute and funny. =)

Interestingly enough, I saw Dr. Lutz on monday to fill out some paperwork for OVR and while I was there, I got blood work done. My vitamin D count is on the 'barely normal' range (normal is around 32-100, I'm at 35 which is still a marked improvement from November of last year where it was 19). My creatine/kinase is still elevated, as is my cholesterol. *sigh*

I also found out Monday that my Pain Management doc (Dr Sady Ribeiro) has just up and left. *poof* I don't know what's going to happen because of this. I'm not sure if Dr Pro is going to take over my Lyrica and cyclobenzaprine scripts or how long Mt. Nittany Medical (and hence, me) will be without a pain doc.

Other things going on... CE stopped by to give me back a bracelet and my MST3K disks. I hadn't seen him for ages. It was really good to see him. I hope to see more of him. I finished the second Freya Shawl. I'm going to block it today and should have photos later tonight, and I'm totally addicted to House MD now. I think I have a crush on House. *shakes head* so silly...

hugs and love